Caregiver Resources

You Don't Have to Do it Alone

The following resources are provided as a convenience to you. Novartis Pharmaceuticals Corporation expressly disclaims any and all liability and responsibility for these resources and affirmatively denies any endorsement of products, services, or information contained therein. Novartis Pharmaceuticals Corporation does not screen, approve, support, or attest to the accuracy or completeness of these resources or the information provided by them.

National Organizations

Administration on Aging
Washington, DC 20201
1-202-619-0724
www.aoa.gov

Alzheimer's Association
225 North Michigan Avenue, 17th Floor
Chicago, IL 60601
1-800-272-3900
www.alz.org

Alzheimer's Disease Education and Referral Center (ADEAR)
PO Box 8250
Silver Spring, MD 20907
1-800-438-4380
www.alzheimers.org

Alzheimer's Foundation of America (AFA)
322 8th Avenue, 7th Floor
New York, NY 10001
1-866-AFA-8484 (1-866-232-8484)
www.alzfdn.org
www.alzquilt.org

Eldersearch
c/o Fisher Center for Alzheimer's Research Foundation
One Intrepid Square
West 46th Street & 12th Avenue
New York, NY 10036
1-800-ALZINFO (1-800-259-4636)
www.eldersearch.com

Financial Planning Association (FPA)
Denver, CO; Washington, DC
1-800-322-4237
www.fpanet.org

International Association of Registered Financial Consultants (IARFC)
The Financial Planning Building
PO Box 42506
Middletown, OH 45042
1-800-532-9060
www.IARFC.org

Medicare Hotline
1-800-633-4227
www.medicare.gov

National Adult Day Services Association (NADSA)
2519 Connecticut Avenue, NW
Washington, DC 20008
1-800-558-5301
www.nadsa.org

National Association of Area Agencies on Aging (N4A)
1730 Rhode Island Avenue, NW, Suite 1200
Washington, DC 20036
1-202-872-0888
www.n4a.org

National Association of Personal Financial Advisors (NAPFA)
3250 North Arlington Heights Road, Suite 109
Arlington Heights, IL 60004
1-800-366-2732
www.napfa.org

National Association of Professional Geriatric Care Managers (GCM)
1604 North Country Club Road
Tucson, AZ 85716
1-520-881-8008
www.caremanager.org

National Eldercare Locator
1-800-677-1116
www.n4a.org/locator.cfm

National Family Caregivers Association (NFCA)
10400 Connecticut Avenue, #500
Kensington, MD 20895
1-800-896-3650
www.nfcacares.org

National Hospice and Palliative Care Organization (NHPCO)
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
1-703-837-1500
www.nhpco.org

Social Security Administration
1-800-772-1213
www.ssa.gov

More Web Resources

Here is a list of related links that may be of interest.

General Information About Disease-Related Issues

		Doctor's Guide.com — Alzheimer's Disease This section of the website provides medical news and information for people with Alzheimer's disease and caregivers. www.pslgroup.com/alzheimer.htm
		Family Caregiver Alliance This national organization is dedicated to providing information, support, and advocacy to caregivers. www.caregiver.org
		MayoClinic.com — Alzheimer's Center This section of the website provides information and resources for people with Alzheimer's disease and caregivers. www.mayoclinic.com/health/alzheimers/AZ99999
		Alzheimer's Research Forum This site provides a listing of professional neurology journals, with links to journal sites. Index provides information on availability, abstracts, full text, and subscription fees. www.alzforum.org

Reading Material for Patients

Aerobics of the Mind: Keeping the Mind Active in Aging: A New Perspective on Programming for Older Adults
Marge Engelman, PhD
Attainment Company, Inc., 1996
Learn about exercises to keep the mind active.

Alzheimer's: The Answers You Need
Helen D. Davies and Michael P. Jensen
Elder Books, 1997
This book provides concise and very direct answers to more than 100 commonly asked questions about the disease.

Be Prepared: The Complete Financial, Legal, and Practical Guide for Living with Cancer, HIV, and Other Life-Challenging Conditions
David S. Landay
St. Martin's Press, Inc., 2000
This comprehensive book provides clear explanations about financial and legal matters and offers many resources for people living with chronic illnesses.

Keep Your Brain Alive
Lawrence Katz, PhD, and Manning Rubin
Workman Publishing Company, Inc., 1999
Find out about the aging process of the brain and read about mental exercises to keep the mind active.

Show Me the Way to Go Home
Larry Rose
Elder Books, 1996
A man with early-onset Alzheimer's shares his day-to-day experiences of coping with the disease.

Speaking Our Minds: Personal Reflections from Individuals with Alzheimer's
Lisa Snyder, LCSW
W. H. Freeman Publishers, 1999
Seven people with Alzheimer's disease discuss their feelings, thoughts, and experiences. The author's own insights are included as well.

Total Recall: How to Maximize Your Memory Power
Joan Minninger, PhD
MJF Books, 1997
This book offers easy-to-follow tips to make the most of one's memory abilities.

Losing My Mind: An Intimate Look at Life with Alzheimer's
Thomas DeBaggio
Free Press, 2002

The Forgetting: Alzheimer's: Portrait of an Epidemic
David Shenk
Alfred A. Knopf, 2003

Alzheimer's Activities: Hundreds of Activities for Men and Women with Alzheimer's Disease and Related Disorders
B. J. Fitzray
Rayve Productions Inc, 2001

Reading Material for Caregivers

The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life
Nancy L. Mace, MA, and Peter V. Rabins, MD, MPH
Warner Books, 2001
This book provides comprehensive information on caring for a person with Alzheimer's disease.

Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend
Claudia J. Strauss
New Harbinger Publications, 2002

There's Still a Person in There: The Complete Guide to Treating and Coping with Alzheimer's
Michael Castleman, Dolores Gallagher-Thompson, PhD, and Matthew Naythons, MD, GP
Perigee Books, 2000
This book takes a practical and supportive approach to caring for someone with Alzheimer's disease.

Alzheimer's Early Stages: First Steps for Family, Friends and Caregivers
Daniel Kuhn and David A. Bennett, MD
Hunter House (CA), 2003

The Validation Breakthrough: Simple Techniques for Communicating with People with 'Alzheimer's-Type Dementia'
Naomi Feil, Vicki De Klerk-Rubin
Health Professions Press, 2002

Gentlecare: Changing the Experience of Alzheimer's Disease in a Positive Way
Moyra Jones
Hartley & Marks Publishers, 1999

When Someone You Love Has Alzheimer's: The Caregiver's Journey
Earl A. Grollman, Kenneth S. Kosik
Diane Pub Co, 1996

The House of Beartown Road: A Memoir of Learning and Forgetting
Elizabeth Cohen
Thorndike Press, Large Print Edition, 2003